Posts

Showing posts with the label disability

Navigating My Daily Life with Cerebral Palsy As An Adult

Image
I am an adult and I am navigating my daily life with cerebral palsy. As you may have known my life story, I cannot speak or walk on my own because of my cerebral palsy. (If you missed my life story, you should read “ My Story: Living With Cerebral Palsy, Part I: Birth and Childhood ” blog post) Also, I cannot feed myself, dress myself, and drive whereas I can walk with assistance, stand independently, and transfer to any seating positions. I use my iPad to talk to you every day. I occasionally use an alphabetical chart to communicate. I also use a wheelchair. I use leg braces that enable me to move and coordinate my legs actively.  Those supports are always necessary to help me live a healthy and active life and maintain my independence.  I am very independent but I require 24/7 care that meets my personal and compassionate needs. I am right-handed. I can easily hold objects with one hand. I can use my fully functional body to perform physical activities such as exercising, po...

I Grew Up Loving Fashion

Image
I started falling in love with fashion when I was a little girl. I thought fashion would be my biggest dream and passion. From a little girl to a young beautiful woman, I would wear everything I want especially, pink which is my favorite color. I feel pretty obsessed with that color pink. Many grown-up girls wear everything pink. There are a lot of reasons why girls love pink. For instance, they behave like Barbie, pretend to be a girly-girl or a princess, and look beautiful as much as I do. Nobody can stop loving PINK ! As a little girl, I wore cute and adorable clothes including dresses, gym shoes, and Mary Jane shoes. I started wearing leg braces when I was a toddler because I needed the support due to my cerebral palsy. These leg braces can fit my comfortable shoes. I had short hair (my short hair looked like a tomboy lol). My hair started growing to be a medium length when I was around 13 years old. (In fact, I don't like short hair anymore because it's too tomboyish and t...

Being Nonverbal Doesn’t Mean I Have Nothing To Say: How Do I Communicate as An Adult with Cerebral Palsy?

Image
Although I could not speak on my own due to my cerebral palsy, I felt pretty frustrated and insecure about being nonverbal. However, it does not mean I have nothing to say. Now, I can communicate through my iPad. As I communicate with you, I want you to know that my CP doesn’t affect my mind at all and I don’t have any intellectual or cognitive issues. Cerebral Palsy is a neurological disorder caused by brain damage that affects a person’s ability to move, walk, and posture. Sometimes CP affects a person’s ability to speak which is caused by dysarthria. (Dysarthria is a speech disorder that causes muscle weakness in the neck or mouth. It can make it hard for people to speak. They may have trouble understanding what they do). People with cerebral palsy have different symptoms based on their physical abilities. Some people with cerebral palsy like myself cannot speak whereas others with cerebral palsy can speak or have speech impediments. Many people assume that people with nonverbal cer...

My Story: Living with Cerebral Palsy, Part I: Birth and Early Childhood

Image
I was born prematurely on September 12, 1996. That day, as being 32 weeks pregnant,  my mama underwent an emergency c-section because she had miserable pains in her bump after admitting to the hospital two days before. I FINALLY made it @ 11:54 am! I weighed 5 lbs 5 oz. Shortly after my birth, I suffered from a traumatic stroke as a result of my diagnosis of cerebral palsy which leaves me unable to speak on my own. Me as a newborn baby girl.  Me as a newborn baby girl with my daddy  Me as a newborn baby girl with my mama  Me as a newborn baby girl Cerebral Palsy is a neurological disorder caused by brain damage which affects my ability to move, walk, and speak. The disorder also affects muscle coordination and balance. There’s no known cure for CP. However, people with cerebral palsy will need a wide range of medical care, therapies (physical therapy, occupational therapy, and/or speech therapy), mobility aids such as walking aids and wheelchairs, and/or assistive te...